#rareally Mark Wilson
#rareally Kristin Phillips
#rareally Kimberly Lee
#rareally Mary Holmay
#rareally Emily McGinnis
#rareally Christopher Dixon
#rareally Sean McAuliffe
#rareally Rebecca Karp
#rareally Jennifer VanHoutan
#rareally George Mills
#rareally Donna DiStefano
#rareally Claire Miller
#rareally Jerod Brinkman
#rareally James Lake
#rareally Shanna Jackson
#rareally Mishima Gerhart
#rareally Tracy Porter
#rareally Suyash Prasad
#rareally Leigh Fuller
#rareally Monica Coenraads
#rareally Dan Lewi
#rareally Samantha Brant
#rareally Sharon King
#rareally Chelsea Karbocus
#rareally Debra Uhl


An Ally in Rare

#RareAlly embodies who Taysha is at its core. It is our way of recognizing the individuals and groups who inspire us – each and every day. Our collective experiences and connections with patients, caregivers, advocacy leaders, researchers, physicians and our many other partners fuel our work and passion. Together, we can accomplish what has never been done before. Watch our Taysha team in action as we work hand-in-hand to reach new heights and make our mission a reality.

Taysha’s Connection

Ally – it’s in our name. When translated, Taysha means “friend” or “ally,” and it represents our commitment to those we work with and to the patients we work for. We remain steadfast in our promise to the rare disease community by not only listening to patients and caregivers, but by fostering deep-rooted understanding of the entire patient journey. We don’t simply listen; we act. We incorporate patient and caregiver input into our work from developing patient-centric clinical trial protocols to helping communities understand the complexity of gene therapy as we carry out our mission of being an ally to all of those in rare disease.

The strength of this bond with our allies will enable us to succeed.

(From left to right) RA Session II, Emily McGinnis, Amber Freed, Kasey Woleben, Kim Nye and Suyash Prasad

Together as One

For Rare Disease Day and beyond, we commit to respecting, honoring and recognizing those who inspire us every day, who challenge us to give and be our best, and who we lean on for support. Together with patient communities and medical researchers, our efforts are amplified and our goals become more attainable. When we unite in one powerful voice, the impact and difference we can make is clear, not only locally, but in communities around the globe. Together, let’s uplift those allies around us in rare disease.

Members of the Taysha R&D team posing with Cheeriodicals as they make kits for families at the Ronald McDonald House in Dallas, Texas

Share Your Story

We encourage you to spread awareness by highlighting in your own way what inspires you to be a #RareAlly. Whether it’s the work you’re doing to make a difference in rare disease, someone you work with, or even a family member or friend – let your allies know how they’ve inspired you. Share your #RareAlly stories on social media to continue the momentum in your own communities and follow us to stay up-to-date!

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