At Taysha, the patient, their family, caregivers and the communities we serve are at the heart of everything we do. To elevate this promise and commitment, in 2021 we launched an initiative called #RareAlly. It is our way of recognizing every person and group who inspires us on this journey. It is an opportunity to come together with patients, caregivers, advocacy leaders and all of our partners to uplift our allies in rare disease.
This year is no different as we are building upon that same momentum to feature more stories and photos of people as they share what being an ally in rare means to them and how they bring allyship to life in the community – including you!
To share your story, please submit one photo of yourself, whether alone or with your personal ally and answer as many questions as you would like. Your story will serve as a source of inspiration and strength to the community around us and allow others to learn how to be a #RareAlly in rare disease as well.
The deadline for all photo and quote submissions is Monday, February 21st. Please make sure to upload your photo and provide your answers by this date – we need plenty of time to put our artwork together before Rare Disease Day!
Tips for taking high quality photos or using previously taken ones can be found below.
You must fill out all areas of the form including:
- Photo consent form – Make sure to check off that you provide Taysha with full consent to use your photo in our campaign, on the #RareAlly webpage and for potential usage on Taysha social media channels.
- Quote – You can choose any of the below questions to help share your story. The message will appear with your picture.
- Photo upload – Please only upload a maximum of three photos of yourself whether you’re, bringing allyship to life through your work in the rare disease community or together with your personal ally and source of inspiration – whatever sparks passion for you! You’re also welcome to use a previously taken photo. However, please make sure it checks the boxes of what’s outlined in the tip sheet.